Kid PT’s Top 5 Therapy Approaches to Spark Change & Support Children with Cerebral Palsy

Did you know that cerebral palsy (CP) is the most common childhood movement disorder?  

At Kid PT, our physical and occupational therapists work with many children impacted in different ways by cerebral palsy. Sine cerebral palsy can affect people in different ways, and symptoms can range from mild to severe, an individualized treatment plan will make the biggest impact. .

Although CP is a lifelong condition that cannot be cured, therapy can help individuals with CP manage their symptoms and improve their quality of life. That’s where physical therapy and occupational therapy can play an important role.  The goal of therapy for CP is to improve mobility, whether it is to crawl, walk, run or use an assistive device, increased range of motion & flexibility to decrease contracture risk and improve muscle activation (tight muscles are harder to contract!), improve breath support for speaking, and improve gross and fine motor skills.    

Many parents have shared that they’re just told to wait and see or just keep doing what they’re doing- whether that is early intervention or school-based therapy.  A frustration I have heard over and over again is that parents aren’t given their options.  The reality is that there are so many different therapeutic approaches and options out there and different children will respond to different ones at different times.  One new resource is called www.turnto.health and is helping support parents researching their treatment options. Overall, therapy is an important part of the treatment and management of CP, and it can help individuals with the condition improve their quality of life and reach their full potential. It is key to develop a customized treatment plan that addresses each child’s unique needs and goals.

Our Kid PT Therapists Share Their Top 5 Therapy Approaches:

TOTAL MOTION RELEASE- Tots & Teens (TMR) & CEREBRAL PALSY

If your child has been in therapy, you have seen them work on things that are hard, difficult and often impossible for them over and over.  

We know your child can do hard things and we want them to learn that too. But what if there was a more EFFECTIVE option??? Another way that will ACCELERATE your child’s progress.

Total Motion Release or TMR for short, is a breakthrough method for children to access new movement abilities by using their strengths and focusing on all that is easier to do. By flipping the old approach of practicing the hard stuff on its head, old limits fall away and new potential is found.  And the best part?  Changes happen within minutes rather than weeks and parents can learn how to do TMR at home and see the changes increase exponentially.

This means that change can continue to happen in between therapy appointments.  Imagine how much more dramatic progress would come if it happened everyday and not just once or twice a week.

If you aren’t familiar with TMR and aren’t sure if it’s the right approach for your child and your family, the changes in your child’s body after just one session will show you the potential.  You don’t need to commit to months and months of trying it out to see if this will work for your child.  The change will happen before your eyes on Day 1!

UNIVERSAL EXERCISE UNIT (AKA SPIDER CAGE) & CEREBRAL PALSY

The universal exercise unit or “Spider Cage” gives children of ALL abilities the opportunity to experience and experiment with movement in all different positions with whatever amount of support is needed. This experience can give your child the experience of all the things they CAN do and CAN control.

The “Spider Cage” is a dynamic movement experience, so it doesn’t compare to standers or gait trainers and allows children to work on all sorts of skills without the fear of falling. It lets them explore and take risks while increasing strength and motor control all at the same time.

Many children with movement delays or disabilities develop a learned helplessness from frequently experiencing things being difficult or impossible. Learned helplessness is when you have learned that you can’t do something, so you stop trying. 

It is an understandable reaction, but one we have to be mindful of when guiding children to practice hard things. The Spider Cage is a fantastic tool for children to experience what they are capable of doing, with just the right support. This can be basic gross motor skills like sitting, standing and walking, or it can be more advanced skills, like hopping and jumping.

There are so many reasons why the Spider Cage is a powerful therapeutic tool to accelerate your child’s progress. If you worry about your child not having all possible opportunities to develop new movement skills, you should try out the Spider Cage to see firsthand what your child can do!

The Spider Cage gives children access to developing new skills and abilities, by supporting them to increase strength, balance, motor control, endurance and sensory processing, all while having sooooo much fun. Remember, fun is really important when it comes to children- if they’re having fun, then they’re LEARNING!

 INTENSIVE THERAPY PROGRAMS & CEREBRAL PALSY

Intensive Therapy Programs are an opportunity for children to get out of their everyday routine and dedicate a period of time to accelerate their progress in order to work towards their personal potential.

The individual intensives are one on one between a child and therapist. Children with CP and related disorders require a lot more practice and sensory feedback to learn new skills than is often possible in a traditional therapy schedule. Summer and school breaks are a perfect time to take this opportunity.  Intensive therapy gives the child the gift of time, giving them the opportunity to work towards their full potential!  

Therapy one or two times per week for short periods can’t compare to the change a child can make with daily therapeutic work.  This means more practice and more support to create and integrate change that children will then take with them for a lifetime.  

For over 2 decades the Kid PT intensive program program has been developed to be effective at improving not only a child’s motor skills, but the quality of their lives moving forward.

Its an opportunity for kids to immerse themselves in all the supports that they need to ACCERLATE their development and to MAXIMIZE THEIR POTENTIAL.

Most of the time kids are going week after week to therapy where they have this  little snippet of time to get therapeutic support. The other 23 hours of the day parents are  left trying to figure out how to keep practicing skills at home, in order to  make meaningful progress happen. This all has to happen on top of the struggles of  daily life, from the basics of making meals, bath time, driving from here to there , while at the same time dealing with high sensory needs and regulation difficulty the the child is experiencing day in and day out.

This is the recipe for stress for the child, the parent and the whole family!  Big stress means we need to take powerful action to bring about CHANGE.

Having the time and attention to focus on new skills has the power to make meaningful change for children with cerebral palsy.

SENSORY ENHANCEMENT & CEREBRAL PALSY

While cerebral palsy is often viewed through a lens of movement challenges, it’s essential to recognize the significant impact on the sensory system for children with this condition. At Kid PT, we understand the interconnectedness of sensory and motor skills, and we utilize various tools to enhance sensory experiences, thereby improving movement skills.

In our therapy programs, we employ a range of sensory enhancement approaches, including wearable suits, vibration plates, and swings. These tools offer targeted support to address sensory regulation, postural control, body awareness, and balance—key areas for children with cerebral palsy.

Wearable therapy clothing, such as Theratogs, SPIO, and Benik, can be transformative for children with CP. These garments gently encourage the body to achieve better alignment, posture, and movement patterns, fostering holistic development. By integrating wearable therapy clothing into your child’s daily routine, you’re embracing a comprehensive approach to their well-being and development.

Unlike therapies that require separate sessions, wearable therapy clothing seamlessly integrates into daily activities, providing consistent support without disruption. Whether your child is playing, learning, or socializing, these garments work harmoniously with other therapies and interventions to create a tailored plan that meets their unique needs.

In addition to wearable therapy clothing, various swings offer valuable sensory experiences during play. Swings stimulate the inner ear and vision while allowing children to control their bodies, promoting postural control, motor planning, and sensory organization. Whether it’s a platform swing, bolster swing, or net swing, each provides opportunities for skill development in a fun and engaging way.

Furthermore, we utilize whole-body vibration to enhance balance stabilization, increase arousal and attention, and improve sensory awareness for better motor control. These sensory enhancement techniques, combined with movement strategies, synergistically support children with cerebral palsy on their journey toward improved skills and independence.

ELECTRICAL STIMULATION & CEREBRAL PALSY

Neuromuscular electrical stimulation (NMES) and spinal stimulation have emerged as promising therapeutic modalities in the management of cerebral palsy (CP) in children. NMES involves the application of electrical currents to targeted muscles to elicit contractions, improve muscle strength, and enhance motor function. In children with CP, NMES can be particularly beneficial for addressing muscle weakness and spasticity. By facilitating muscle activation and promoting neuromuscular re-education, NMES contributes to functional gains and enhances mobility, ultimately empowering children to engage more fully in daily activities and improve their overall quality of life.

Spinal stimulation, on the other hand, targets the spinal cord directly, aiming to modulate neural pathways and influence motor output. Through the delivery of electrical impulses to specific regions of the spinal cord, spinal stimulation can regulate muscle tone, reduce spasticity, and promote more coordinated movements in children with CP. This innovative approach holds great promise for improving motor control and functional abilities, offering a non-invasive alternative or complement to traditional therapy interventions. Research in this area continues to evolve, with ongoing investigations exploring the optimal parameters and protocols for spinal stimulation in children with CP.

While both NMES and spinal stimulation show considerable potential in the treatment of cerebral palsy, it’s important to approach their use with careful consideration of individual needs and goals. Collaborative decision-making involving healthcare professionals, therapists, and families is essential to ensure the safety, efficacy, and appropriateness of these interventions for each child. With further research and advancements in technology, NMES and spinal stimulation hold the promise of revolutionizing cerebral palsy management, offering new avenues for enhancing motor function and improving outcomes in children with this complex condition.

Case Study: A Journey of Progress at Kid PT

At Kid PT, we had the privilege of working with a young boy named Ethan, diagnosed with cerebral palsy. When Ethan first came to us, his mobility was severely limited, and he faced challenges in performing everyday activities independently. Through a comprehensive therapy approach that included spider cage therapy, sensory enhancement techniques, and intensive therapy sessions, Ethan began to make remarkable progress. With each session, he gained confidence in his abilities, and his parents noticed significant improvements in his mobility and overall well-being. Today, Ethan continues to thrive, defying expectations and embracing new milestones with determination and resilience—a true testament to the transformative power of therapy.

At Kid PT, we’re dedicated to empowering children with cerebral palsy to use their strengths to achieve their personal potential. With our innovative therapies, tailored treatment plans, and unwavering compassion, we’re here to offer the guidance and support necessary for significant breakthroughs and lasting transformations. If you’re eager to learn more about possibilities you’ve have explored before, we warmly invite you to schedule a Discovery Visit with us today.

Together, let’s pave the way for a future brimming with hope, progress, and limitless opportunities.


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Mom ALWAYS knows best:

Trusting Your GUT when your child is ill

What happens when your child is ill?

Have you ever thought you were going crazy when it came to your kids? Sure, we all get stressed out by the demands parenting requires of us whether they be mundane, daily happenings (“No you can’t have another cookie!”, “Stop teasing your brother!”) or extreme, unlikely circumstances (Hello pandemic-looking at you!)

But, what if there was something wrong with your child, (who also happens to have neurodevelopmental delays or another neurodivergent diagnosis)  and no experts had any answers for you? What if you took your kiddo to all the “BEST” doctors out there and they either had no answers, their diagnosis conflicted with one another, or worst of all, they just didn’t believe your child had a problem?

Mom gives daughter medicine

Misdiagnosis happens.

I am here to tell you that it happens.  And when it is your child who is struggling and suffering, it is exquisitely painful. You feel like you are living in a nightmare that you simply cannot wake from and that somehow, those around you are seeing a distorted view of reality.  A 2019 article* states that, “the mindset that young children are rarely seriously ill is one of the main reasons that they are more likely to be misdiagnosed than adults are. That’s on top of all of the ways that approximately 10 percent of American adults are misdiagnosed every year. When doctors and nurses expect to see a healthy child with a common short-lived illness, they may miss the uncommon ones.”  

The article goes on to list the main reasons for children receiving a diagnosis that’s wrong or delayed:

  1. Attitude: Since most children are healthy, and most illnesses resolve on their own, doctors may tend to reassure parents rather than accept concerns are real
  2. Biology: Young children’s bodies and systems are radically different than adults, so they present and respond in unexpected ways
  3. Unequipped: Most children’s emergency room visits are to community or adult hospitals that often don’t have needed kid-sized equipment or pediatric experts. Urgent care centers have similar issues.
  4. Communication: Young children don’t understand or know what is wrong so they’re dependent on parents or caregivers to recognize and then interpret their symptoms

Experts may give you the brush off.

However, there are cases where a parent’s concerns are dismissed, as I was when my daughter presented with a long, puzzling, seemingly unrelated laundry list of symptoms that spanned years, nearly a decade by the time a diagnosis was finally rendered.  During that time period, I was given advice from some well-meaning individuals who said things like:

  • “Just accept her as she is and stop looking for answers that aren’t there.”
  • “Doctors are the experts and you have to trust them when they tell you something, even when treatments don’t work or something seems to be missing in their answer.”
  • “You want her to be sick so that you get attention or sympathy”
lab test machine

Did any of this help my daughter get better or me find answers? That would be a resounding no.  Oh, and by the way, that last piece of “advice” above was given to me, in front of my child, by a supposedly well-respected doctor. He dismissed all the hundreds of pages of tests, scans, medical records and prior diagnosis, didn’t help my daughter, and charged for it!

So what DO YOU DO?  You don’t give up- you trust your gut! Parents know their children best and what their “normal” looks like, even if it doesn’t match the textbook image. Remember to believe in yourself and your ability to help your child. Make a bulleted list of every symptom, even if it does not seem totally related, and the date the symptom started. Research the heck out of your child’s symptoms and any test results you have, using the best and most trusted resources you can find.  Become well acquainted with clinical research papers, societies for various branches of disease types ( think brain, stomach, nervous system, etc.)  Join an online group for other parents who may be seeking answers for their child or who may have information to share.

The Society to Improve Diagnosis in Medicine says not to get overwhelmed by the risks of misdiagnosis. Rather, recognize there are a few key things to do, to assist in getting an accurate and (hopefully) prompt diagnosis. These tips also help if your child is in the middle of a diagnostic journey today.

  1. Sign up for the doctors’ or hospitals’ patient portal and check the records thoroughly. “Is the information correct? Are the medications and medical history correct? Read it, correct it, and tell the doctor” or the staff.
  2. Important test results can slip through the cracks and that may lead to misdiagnosis and lack of treatment. Keep track of any tests that are done on your child. That includes blood tests, urine tests, x-rays, and any other type of scan. If your child has a test, simply ask when the results are expected and note it in your calendar. If you don’t get called or emailed with results, call and ask about them. Remember, “No News is No News.” Don’t accept being told, “We will call you if there’s a problem.”
  3. Trust your gut. You’re the people who know and care about your child the most. All of the experts encourage parents to speak up if they feel their child’s symptoms aren’t getting enough attention or if there’s any confusion between what the family is saying and the medical professional is hearing.
  4. If your child isn’t showing signs of improvement, get a second opinion. Ask friends and family members in town for a recommendation of a pediatrician in a different practice, or ask your current pediatrician for a specialist to give a second opinion.
  5. Be prepared before you bring your child to the doctor or an emergency room. While your child is healthy, check if there’s a pediatric urgent care or emergency room close to where you live. If you have a planned appointment, there is a valuable tool you can start using today. The SIDM Patient Toolkit is a handy step-by-step workbook with sections to fill out before, during and after your doctor’s appointment.
  6. If you’re using the internet to look for more information, be sure to use reliable and trusted sources. The American Academy of Pediatrics’ (AAP) Healthy Children section is a great place to begin. 

In closing, you, as a parent, are the most trusted authority on your child.  If you feel that something is wrong with your child and it is not getting resolved, don’t be afraid to speak up.  Your child and your family deserve answers and the best possible care.  Be brave and know that what your GUT is telling you, may be right. (If you have a question for Melanie (author/Kid PT Marketing) email her at info@kidpt.com)

*References

https://www.improvediagnosis.org/dxiq-column/why-your-child-is-more-likely-to-be-misdiagnosed-than-you-are/

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Top Tips for the Sensory Savvy Parent

Savvy parents know that every child has their own sensory preferences and things they avoid. Whether it is picky eating, not liking the seams in socks, or having a hard time sitting still because the child’s body has the wiggles, every child has their own sensory world. Every adult has their sensory preferences too, but we learn to manage our needs by taking walks when we need to wake up a bit, chewing gum to stay focussed, or shaking our foot while listening to a speech.

Every child will have their own personal sensory profile, but when is it time to get help. When sensory preferences are impacting daily life, that’s a good time to seek help from an occupational therapist or a physical therapist.

Below we’re going to introduce the difference sensory systems and give you some tips to start figuring out what sensory strategies will help your child.

Proprioceptive System

Kids who seek out rough play, jumping and/or crashing, or our kids who like to lie down on the ground a lot may need more input to this system.  It helps us to sense movement and organizes our bodies to help with coordination, body awareness and spatial awareness.

TRY activities that involve:

Vestibular System

Kids who appear to seek constant movement, are risk takers and like to be upside down may need more input to this system.  Some kids may look more sedentary or lethargic and may also need some vestibular activation! This is another movement sense, it is related to our head position in space, and gives our bodies information about balance and is closely related to our visual system. 

TRY activities that involve: 

Tactile Input

Kids who are constantly touching and fidgeting may need more input in this area.  Kids who are extra sensitive to seams or clothing, or avoid getting messy might be on the opposite side of  tactile processing.  It refers to our sense of touch, and can impact all areas of function from eating to walking to feeling the  nuances of toys and materials during self-care and play.

TRY activities that involve: 

Auditory Input

Kids who are constantly humming, yelling, and making other noises, they may need more auditory input than other children. Kids who zone out, seem to ignore you, or struggle to shift from one listening to another listening cue/instruction (or for example, respond to their name). 

TRY activities that involve: 

Visual Input

Kids who require more visual input may look closely at objects. They may seek out moving or spinning objects. They may have difficulty focusing on information presented visually.   On the other end, lights might be too bright or the child may struggle to adjust to lighting changes, or become overwhelmed incertain lighting, like fluorescents. 

TRY activities that involve: 

Olfactory and Oral Sensory Systems

Kids seeking out input to these systems may lick or smell objects like crayons or toys. Chewing also provides proprioceptive input, so kids may bite or chew on objects (think pencils or shirt collars).  May be averse to tastes or smell, picky eaters tend to be sensitive in this area. 

Links to some of our favorite sensory products:

Need some more help finding sensory savvy solutions for your child! Reach out to us at info@kidpt.com and schedule a FREE Discovery Visit with one of our therapists to learn more.

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Top 7 Reasons to Supercharge Your Child’s Physical Therapy with the Spider Cage

There are so many reasons why the Spider Cage is a powerful therapeutic tool to integrate into your child’s physical therapy program. If you worry about your child not having all possible opportunities to develop new movement skills, you should try out the Spider Cage during a trial session at our office to see firsthand what your child can do!

Why is the Spider Cage so powerful? Let’s look at 7 reasons that the Spider Cage gives children access to developing new skills and abilities, by supporting them to increase strength, balance, motor control, endurance and sensory processing, all while having sooooo much fun. Remember, fun is really important when it comes to children- if they’re having fun, then they’re LEARNING! Let’s get into those 7 reasons now.

  1. Exploration of New Skills

The Spider Cage is setup where the child wears a belt and the bungees connect to the belt. There are 8 bungees that can be attached to the belt with 2 on each corner.The child can be sitting, on hands and knees, standing, walking on a treadmill or moving between positions. The bungees in the Spider Cage provide support, but they’re also dynamic, so it is a different experience for a child that has been in a stander or a gait trainer. It is also different than having a parent or therapist helping. The child can try out new skills with just enough assist, but they are initiating the movement and responding to what worked and what didn’t work to learn from the experience.

In the video below, you can see the boy practicing standing up by himself without using his hands, which he can’t do outside of the Spider Cage. Over time the bungees can be lowered or only 4 bungees can be used to build more independence, which can then generalize to outside of the Spider Cage.

2. Confidence Building

Many children with movement delays or disabilities develop a learned helplessness from frequently experiencing things being difficult or impossible. Learned helplessness is when you have learned that you can’t do something, so you stop trying. It is an understandable reaction, but one we have to mindful of when guiding children to develop new skills and abilities. The Spider Cage is a fantastic tool for children to experience that they are capable of doing, with just the right support. This can be basic gross motor skills like sitting, standing and walking, or it can be more advanced skills, like hopping and balancing on dynamic surfaces.

The boy in the video initially needed hands on help to perform this motion. He didn’t try to initiate it on his own and needed help to complete the motion. After several times in the Spider Cage, he learned how to transition from hands and knees to standing with the help of the bungees alone. He was so proud of himself and this transferred to him helping more with transitions off the floor outside of the Spider Cage.

3. Safety to Try Higher Level Balance Skills

Children will limit attempts at new skills if they know their body isn’t going to be able to do it reliably and safely. Knowing they can’t fall, the Spider Cage gives the opportunity to try all sorts of challenging balance tasks without the risk of falling and hurting yourself. This way, the kids can work on those advanced skills, flood their brains with novelty and develop more advanced movement control.

In the video below, she challenges herself to move from standing to half kneel while standing on a bolster that rolls side to side. What a challenging task! This would be a risky thing to try holding maybe a trapeze overhead and would have allowed her to rely mostly on her arms, instead of her hips. Doing this activity in the Spider Cage let her work on a high level of hip and balance control and no rely on her arms for help.

4. Sensational Sensations

As we said before, the Spider Cage is a DYNAMIC place to be! The bungees provide resistance and assist to movement, giving intense proprioceptive/deep pressure input to the children’s bodies. All of the movement is very stimulating to the vestibular system in the inner ear as well. The Spider Cage is a great place to put together the postural system with the eyes, vestibular (inner ear), and proprioceptive (information from joints and muscles) to work on improving body awareness and regulation skills.

In this video you will see a boy doing intense jumping, having a BLAST, and regulating his system to do focussed work afterwards!

5. Hands Free Movement

Children who use crutches or walkers for mobility are always using their hands to help manage the rest of their bodies. The problem is that they then become limited in using their hands for other activities, such as carrying something, and they rely on using their arms to initiate movement, rather than using the pelvis, the cornerstone and powerhouse of our bodies.

In this video you’ll se a boy playing basketball where he typically needs a person to help or his hands on an assistive device to be able to do an activity like this.

6. Speed & Power

The Spider Cage gives the support a child needs to be able to work on moving at increased speeds than they could do outside of the cage. It also lets them work on their power with jumping and leaping. The dynamic assist on the bungees give greater access to new skills while decreasing risk of falls at the same time. This allows motor control, strength and endurance to build to support the use of increased power and speed outside of the cage in the future.

In this video, the boy walks 2mph, when he usually walks at a slow pace with crutches, he’s able to explore increased speed. You can see how proud he is at his acomplishment!

7. Play

Play is how babies and children learn! Play in the Spider Cage gives access to children with a limited play repertoire to develop more advanced play skills. Children can jump, kick a ball, throw a ball, and knock down towers. There are so many games children with limited play skills can try out in the Spider Cage!

In the first video below, the boy initially needed assistance from the therapist to stop on the target. With practice he was doing it all on his own and laughing so hard each time!

In the second video, we used the Spider Cage in a completely different way to make a ninja obstacle course with the bungees! The boy is working on his midrange postural control to move over and under while trying not to touch the bungees.

In the 3rd video the boy is playing t-ball! He has the opportunity to be hands free using the support of the bungees to play the game!

Blast off!!!
The ninja avoids the obstacles at all cost!!!
Baseball time!!!
Every kid deserves to knock over their therapist once in a while!!!

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Arts for All!

Participation in the arts are a way for someone to express themselves. It creates a window into the soul and an escape all in one. Some turn to painting, drawing, music, drama, or dancing to find their sense of self or to relieve stress after a long day, and this is no different for kids and adults with Cerebral Palsy (CP). Taking part in the arts is a wonderful thing for children with CP to do, no matter their level of disability, and here’s why!


Self Expression Without Limits

The arts allow for a place to explore what you are thinking or feeling. Whether you are verbal or non-verbal, participation in an art form is a way to get your feelings out! Society often tries to put us in boxes that may make us feel limited. But when you are creating art, you get to make the rules. Bend the rules to work for you

Adaptability

With the free form nature of many arts programs there are no rules that have to be adjusted to make it work for your body. If your dancing includes, moving your head side to side to make your wheelchair turn to the right and the left, do it! If you need something to secure a paint brush to one of your hands or to your head to paint your beautiful picture, why not! It’s your masterpiece, so the environment can be set up to make creating your art that much easier.

Community OR Solitary Art

Many arts are performed in a group setting for those who love being social, like Drama. You can find your Drama, Dance, or Visual Arts community if that floats your boat. BUT the cool thing about the arts is many forms don’t have to be done in a group, they can be done alone too if you’d prefer to work that way.

Confidence Booster

For many kids and adults, taking part in the creation of something beautiful, or something they made themselves, is a huge confidence booster. When the right adaptations are in place to support each child or adult, either with motor or intellectual considerations, the child can make something by themselves (or with a little bit of teamwork if needed) and feel proud of themselves for doing so!

Types of Art

Visual Arts

  • Visual arts include painting, drawing, sculpture and photography, are likely to be the most common of all arts programs designed for people with disabilities.
  • The visual arts are easily modified. A child’s pointer finger, pencils, and brushes can all be adapted to fit their needs by instructors or parents. The most common forms of modifications are handles and grips on paint brushes, pencils and pens; easels that can be attached to a wheelchair or placed on a table. There are even attachments designed for the head in which the artist can manipulate the brush, just as is used on a pointer for the computer.
  • Photography can also be modified to meet various physical needs. Cameras can be attached to wheelchairs so they can remain stable while a person is shooting a photo. It might require some creative thinking, but if the photographer cannot use their fingers, cameras can be placed in such a way that a student can use their tongue to release the shutter.

Dance

  • When many people think of dance, they picture the ballerina trope, but that’s not all dance is, in fact, there are so many styles of dance! This includes modern, ballet, tap, and jazz. In the past years, dance has become so much more freeform than people think. With the dawn of modern dance and creative movement, movement can be whatever you want! The creation of movement is often left up to the dancer OR to the choreographer
  • Movement can be created in many ways. Students in wheelchairs can be pushed by a fellow dancer while they dance in their chair or other times can push themselves in a pattern as part of the choreography. Students can use their crutches or walkers to move, participate in floor mobility, and show off their specific mobility strengths. Choreographers can play into this as well, creating routines that maximize each dancer’s strengths.
  • As Dance is very aerobic, it also provides an outlet to work on mobility, strength, and develop flexibility. It can help those moving to stay fit and healthy. It can also help children with CP work on coordination and balance!

Drama

  • Theater programs for disabled actors provide opportunities to show off their talent. Often, modifications are made to shows that make the performance accessible to actors with disabilities. There are troupes of performers with disabilities as well as productions who participate in inclusive casting. 
  • Theater is often all about building community and putting yourself out there, and for many regardless of mobility status, gives actors the chance to put on a second skin. When you are acting as another person, you get to leave your own troubles behind and step into that person’s life and mind for a few hours. This can be a great escape for anyone, including children and adults with a disability.

Music

  • Music is another way that children and adults with CP can creatively express themselves and can be a great stress reliever. Music, like the other artistic forms discussed above, can be followed, but it can also be created! A child with CP can participate in a piece of music though percussive instruments, can learn to strum the strings of a guitar, and others too. 
  • Music therapy is a great outlet to explore as it not only allows for creative expression but also works on rhythm and timing, social skills, language, and mobility!

But where is there to go in NJ for my child with CP to participate in the arts? Check out these links to find out more!

Dance:

http://kayelynndance.com/chance-to-dance/

http://www.danceinnovations.org/dipf

http://kayelynndance.com/chance-to-dance/

http://www.danceinnovations.org/dipf

Theater:

https://papermill.org/access-for-all

Art: 

https://www.tasoc.org/

Music:

https://www.theconnectiononline.org/com

https://jamminjenn.com

References:

https://www.cerebralpalsy.org/information/activities/arts

https://www.cerebral-palsy-faq.org/art-exhibit-highlights-skills-of-children-with-cerebral-palsy.html#:~:text=Art%20therapy%20stimulates%20expression%20and,intelligibility%20due%20to%20cerebral%20palsy.

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3 Ways Total Motion Release (TMR) Sparks Change with Children with CP

Children with cerebral palsy (CP) undergo intervention throughout their lives. They often receive physical therapy, occupational therapy, and speech therapy for many years in the home, school and clinic settings. Parents are often presented with lots of opinions as to therapy options, medical interventions like botox and baclofen, bracing options, and surgical procedures, such as selective dorsal rhizotomy and lengthening procedures.

Although it is a lot to navigate, parents, you need to know that you are the experts in your children, there is not doubt about that. Many parents will tell me that they feel like they are left to manage their child’s care in a world that speaks a different language that are all giving different opinions. This is not easy! That’s why when we provide care for our families, our goal is to help you manage the big picture and not only provide your child’s therapy. We’re here to support you, guide you, and connect you with resources every step of the way.

In the therapy world, there are so many different treatment approaches out there and often they are filled with big promises. This can add to the challenge of navigating the best care for your child. We know that you want the best for your child and we want to empower you to trust your gut, combined with learning as much as you can, to find the best match of services for your child.

TMR is a treatment approach that can be powerful for children with CP. Rather than tell you so, or even show you someone else’s child, I invite you to come in for a Discovery Visit at our practice to learn how TMR can help your child. TMR is integrated into our intensive therapy programs as well as our weekly sessions. It is an approach that is easily accessible for you to do at home in between sessions, which is a big piece of why it is so powerful- your repetition at home adds on to changes that are made in therapy sessions, stacking up to powerful changes in your child’s ability to breath, balance and move.

There is a reason families from around the world, from South Korea to Saudi Arabia, to throughout the United States, from NY, Virginia and Texas, have worked with us to learn how to use TMR to help their children breakthrough limits and open up new worlds of possibility.

Whether you’re curious or skeptical, we want to talk to you and share with you the future of pediatric therapy with children with CP and other movement disorders! Email us anytime at info@kidpt.com or call/text us at 908-543-4390.

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Movement Magic of Tree Fu Tom

A new interactive tv show on Sprout called Tree Fu Tom has made its way over the pond from the UK. It is aimed at children ages 3-7 and my 4 year old has been asking to watch it again and again.

The show is about a boy named Tom who shrinks and turns into a cartoon to enter the world of his garden. Tom and his friends encounter challenges and have to problem solve solutions. This is where the magic comes in. Read more

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Part 2: What Is the Neuro-Developmental Treatment (NDT) Approach?

NDT is a problem-solving approach used by physical therapists, occupational therapists, and speech and language pathologists to improve the abilities of child and adults with nervous system pathologies face during their daily lives. It is not a prescribed series of techniques, but a dynamic approach to planning and implementing treatment. Read more

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New in the Literature: Effects of SSTTEP in Children With Cerebral Palsy (Dev Med Child Neurol. 2011;53:742-750.)

Aim  To compare the effects of a supported speed treadmill training exercise program (SSTTEP) with exercise on spasticity, strength, motor control, gait spatiotemporal parameters, gross motor skills, and physical function. Method  Twenty-six children (14 males, 12 females; mean age 9y 6mo, SD 2y 2mo) with spastic cerebral palsy (CP; diplegia, n=12; triplegia, n=2; quadriplegia n=12; […]

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